Today’s physio session was a success. My physio managed to get me to get up three stairs using the handrail on the stairs and a crutch. It felt like a massive achievement, but coming down them was not so easy. But still, going up even a few stairs feels like a massive step forward. My physiotherapist (henceforth “S”) also gave me some new exercises to help with my hand movement and coordination.
I also sat down with S today to discuss my goals for the future. After speaking to S, we decided that setting an end goal would be too unrealistic, as not achieving the goal would potentially set me back even further. Instead, we’ve set some short-term goals for the next two weeks so I can celebrate the small achievements and try to gain a positive outlook. The help I am getting from S at the moment is fantastic. He can push me further every time we have a session; just enough to get me where I need to be. He knows my physical boundaries and is always happy to listen.
I have to understand that living with FND is a long term disorder and not something I will recover from overnight. I talked to S about the problems and stress that are in front of me, the big decisions that I have to make over the next few weeks and how this is really going to effect me and my family in the long term. He agreed to ask the occupational therapist to come and complete a kitchen assessment to see if they can get me a trolly so I can get my dinner and brew to the dining table instead of eating my dinner sat at the kitchen counter.
I am trying to be realistic and, as much as I hope that I will be able to return to normal, I have to accept that it might not happen and that I will probably need some kind of walking aid for a while.