So first of all, let me apologise for the lack of blogging over the last few days. It has been a busy few days, with a lot going on, physically and mentally. So where to start with this blog, what has been happening since my last post?
It was Grace’s birthday on Friday, she turned 6, I keep thinking wow! where has the last 6 years gone, time seems to fly by nowadays, she had a fantastic birthday and was spoilt by everyone. Her best presents were the camera that her mum got her and the tablet which me and Rachel got for her, I am sure at some point we will regret getting her these lol.
The title of today’s blog is “Looking to the future” what do I mean about this, well where do I go from here, so much has changed over the last few months, and I am sure there are still more changes to come. I sit here thinking about what my next move is, is there something else I need to think about on top of everything I am trying to work towards? The short answer is well, I am not really sure, I do have a lot of support around me, my family have been amazing helping out anyway they feel they can, and word’s will never be able to tell them how much I appreciate them.
My PIP form has arrived and by heck that thing is so long and so much to fill in, luckily I have H, to help me out with it, but saying that I have to understand that she wont be around forever to help me out with things, and with that I have also got my community physio letter, which again means S will not be with me for much longer, these two have been amazing with me, listening to me when I am feeling down to pushing me when I really need pushing! These two are a credit to the NHS staff that work as part of the home discharge team and I honestly wish that everyone who is in my position had access to them! Hats off to them, and Thank-you.
I have manged a little more of outdoor walking this week already, with the help of S and H they managed to get me to take just a few steps with just one crutch and this feeling was amazing but yet short lived as I had a drop attack and nearly hit the floor, luckily S was on hand (as he always is). My aim is to be walking with 1 crutch in 4 weeks and then moving on to a stick, even if I can make it to the top of my road like that I will soo happy.
I have been talking to some amazing people who also suffer with FND over the last few weeks, and they are always there if I need a chat! One of the blogs I read, it was the first one I picked up from when I was first diagnosed with FND, and I can tell you, this lady is a inspiration, always try’s to look on the positive side of everything, even manages to make laugh from now and again. If you get chance go and have a read of her blog, and make sure you give it a follow! mindfulmblogs.wordpress.com
Looking forward, I have my neurologist appointment next week, so I am really hoping for some answers to the questions I have, don’t get me wrong I am anxious about going and seeing what he has to say, but I am in such a better position now then when I was when I last saw him! From there I can start planning on returning to work (hopefully) and start to try and mend the broken life I am living at the moment.
Untill next time! Stay Safe