So what has happened over the last few days? My last blog entry got a lot of interest; it seems showing everyone how your family deal with this illness really hits home. I can tell you that it was the hardest post I have ever written, and it really does bring everything to the forefront of it all. I have now made some new friends and enjoy sharing my experiences with them. If you’re reading this and you have not yet said hello, please do, I don’t bite I promise.
If you have not read my post about FND and Family it can be found here. https://matthewnewsham.home.blog/2019/07/28/family-and-fnd/
After the amount of comments about my post about my family, it really showed me how lucky I am to have them around me. I will be forever grateful for them, if you have someone that looks after you, how ever big or small, make sure you tell them how much you appreciate them. Right now….go and do it!!
If you follow me on twitter you will know that yesterday and today I had a few appointments so; yesterday I had to go back to the hospital to have my wrist re looked at, well as it turns out it was a good idea to listen to Rachel and go to A&E when I first fell over as my wrist is in fact broken in 2 places, now one of the bone’s (The Scaphoid) which sits just below your thumb can be a little begger when it comes to healing, and if it has healed enough in the next 5 week’s I may have to have surgery. So for the whole of the summer I have a cast on my hand and arm. This its self causes a lot of problems. cant walk with 2 crutches being the biggest one, I can manage a little with only 1 crutch but again limits me a fair bit.
Having the cast on, does make me feel a little down, because I felt like I was making progress but this just puts me back, how far back I suppose is up to me. I will try more and more each day to push back, FND will not beat me!
My other appointments today were the infamous H (The OT) and S (The physio) now I can’t remember if I have said before but these are part of the home discharge team from the hospital, they have both been with me since back in May when I came out of hospital. Each step I have taken they were there, every down day, they were there, every achievement, they were there. Well with the break to my wrist, this has unfortunately brought this to a end. They have both been amazing for the last few months, helped me in ways that I’m sure are not part of his job description. They took the time to research FND and what it is and how they can help! I owe so much to them, I can not thank them enough. So this brings us to the start of new beginnings. Community physio is going to take over in the next few weeks, and H is going to check in next week one final time and has popped in a referral to the wheelchair service! So hopefully they will be in contact soon so I can get a new chair!
I know they both read this blog! so make sure you show your boss or the power that is, because you guys are a credit to the NHS, I hope you both have the same effect on others like you have on me! This world could do with more people like you!! THANK YOU!!
While we are talking about others, as most of you no, my brother Paul has done a hell of a lot for me over the last few months as well, Rachel has been in work so in the day times he has been there to pick me up and take me out etc, well tomorrow (Wednesday) he is off into hospital for surgery on his leg! he is going to be out of action for awhile, so Paul, good luck! I sure everything will go as planned, cant wait till you get back home, ill be down to help in anyway I can!!
Well tomorrow I am off to see my speech therpist who has been hard at work tracking people down who could help her, help me! so I will report back what happens tomorrow!
Untill next time!