So what will today’s blog entail? That is a good question, makes me wonder if this blog is just me ranting, putting my thoughts down somewhere? I am going to print out all my post and have a read, that should be interesting. Think today I am just going to put them things in my head on here!
First up, I would like to report that the new tablets I am on, work well! I do have to make sure I eat with the tho, as they can make me feel sick if I haven’t eaten. I have very nearly finished the antibiotics that I have been on……no 5 am wake up just to take the dam tablets. I have to say that for the first time in months I am not in pain for at least 4 hours in the day time! It is amazing!!
I did have a new physio come and see me this week, and after some advise from folks, I had printed some information off about FND, just in case. I was nit sure what to expect, if you have spoken to me, you will no that since May I have had a stutter which when talking to someone is very hard to explain well anything really, I will come back to this in a minute. To my surprise the physio “J” has dealt with a few people with FND, and knew alot about the condition and how to help, so I was very happy with this. I what I have learned is that my stamina is no where near as good as it was. I will do a more in depth blog about physio at a later date, but “J” seems very nice, so I am looking forward to our sessions.
So back to the stutter, before I was taken into hospital in May, I had what most people considered a “Normal” life, now that life has been tipped on it’s head and one thing I struggle with is my speech, while I am working on this is can be very frustrating and annoying. I try talking and sometimes I can hear what I sound like and sometimes I don’t. I try and talk to people and one thing that really grinds me is when people finish what I’m trying to say. I can do it! just please be patient!!
FND has alot to answer for, for alot of different people, and with me been diagnosed with this really disabling condition I have lost a few friends, some of them have just disappeared, gone, fallen from the earth. On the other hand I have gained some really good new friends, people who, before I would of never had the reach to talk to them! I really feel like I have made some new friends for life! Not just from the UK but from around the world! WE ARE #FNDWARRIORS TOGETHER!! You guys know who you are! Love you all ❤ ❤
I am also thinking of starting a support group up in my area, for people with FND, just a meet up maybe once a month, even if it is only for a hour, I am sure people would love it! So if you are a FNDWARRIOR or know someone who is, then drop me a message for more details, I would love to hear from you!
Well this is me till weekend, I am off to read about something called Hygge, My good friend @Mwrites2 has done a blog post about it helps her with her FND. Check it out by clicking her picture below!!
Untill next time Stay safe!!