The Struggle with FND

Why hello there,

It has been a while since I have posted anything, hasn’t it?

I won’t lie, last week was a really tough week for me, trying to deal with everything mentally and physically. I have had new people coming in to see me, and finding out that I have been signed off work again just stuck me in a dark place and if I’m really honest, I didn’t know how to get out. 

I think I am out of the other side of this, for now at least. It the long days with not seeing anyone then when someone does come it’s only for a hour or so then the have gone again. 

I try to work out things that I have been struggling with and find a fix for it, since last week I have really been strugglinig with my memory, more so than normal. I have looked at this on how can I do things to jog my memory if you like, well one is a trusty note book, this is where I write down things I have done or important things I need to pass on. I will be this week working on better ways to deal with this, there is already post it notes around as little tips, as well as a mini poster showing names of people and what they do at the door, just so I can try and remember who is coming and who they are. 

This week I have to write out my job description and what it is that I really do on a day to day basis so I can work with all the therapists that see me with the common goal of getting me back to work. 



This is something that I talk about a lot, this is my BIG long term goal, to get back into work, when is a different matter, I set my self goals and I’m not reaching them, so now I have to set mini goals which lead up to the goals, then onto the  BIG goal which is as I said getting back to work. 

I have already this week been to see a social space which is run by a charity called “NeuroDropin”  now this place when I first heard about it, scared me a little I thought it would be full of the older generation, but to my massive surprise it wasn’t. Yeah granted there was more 50+ people then them under, but still somewhere that anyone of any age could go! This charity deals with all kinds of neurological conditions, and when I went they accepted who I was for who I am! This place has a small little cafe so you can get a coffee and cake, they run daily classes with everything from Neuro Physio to Tai Chi.

If you get chance please pop over to their social media and have a look 

Facebook – Neuro DropIn

Twitter – @NeuroDropIn

Now I know it’s not only me who has had a bad week, but my #fndfamily have also been on the sharp side of the knife, so please look out for the hashtag and check in on them, they are all amazing people and just by checking in with us can really make our day! 

From the last post, have you checked in with the person next to you yet? If not why not? It’s good to talk remember that!

that’s it for now, I’ll leave with you something I posted on my social media today

“In May I was diagnosed with a neurological disorder, I have good days and bad days! I have walking aids including a wheelchair, but I am still me I AM FND!”

Stay Safe


One thought on “The Struggle with FND

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